tag:blogger.com,1999:blog-7448405572418750362.post2839222006708044253..comments2023-08-21T04:48:36.954-07:00Comments on Acromegaly Bloggers: Clinical Trial RejectUnknownnoreply@blogger.comBlogger7125tag:blogger.com,1999:blog-7448405572418750362.post-51083590328334839772009-11-19T23:05:16.348-08:002009-11-19T23:05:16.348-08:00Maybe Julie S. advice is a good thing to comment t...Maybe Julie S. advice is a good thing to comment to your endo: I am on Somatuline Autogel, and the maximum dose is supposed to be 120mg once every 4 weeks, but I get it once every 2 weeks and it seems to be working (not a lot but better than before...)almuhttps://www.blogger.com/profile/06991961953678602937noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-20491296882057360462009-11-17T18:17:08.674-08:002009-11-17T18:17:08.674-08:00Thanks everyone for your kind comments. I was dis...Thanks everyone for your kind comments. I was disappointed for a while, but now I'm just focusing on what's ahead.polarchiphttps://www.blogger.com/profile/05412987146544954470noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-68079978610247958002009-11-17T17:02:56.234-08:002009-11-17T17:02:56.234-08:00Hi Ellen,
What a let down. I was sure looking fo...Hi Ellen,<br /><br />What a let down. I was sure looking forward to hearing about your experience and hoping that you would feel better with the new treatment. <br />I was also being given the Sando every 4 weeks but it just wasn't enough. Now, I have it every 3 weeks (since Jan 2009) and my IGF-1levels are lower and I feel much much better. Just wanted to mention this as you may want to mention it to your Endo. My dose is 20 mg.<br /><br />All the best,<br />Julie (Canada)Julie S.https://www.blogger.com/profile/00177725669562224200noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-2228852501325400212009-11-07T06:32:58.825-08:002009-11-07T06:32:58.825-08:00That's really sad. Just try to be more conscio...That's really sad. Just try to be more conscious of the many blessings around you. Life is good no matter how it sometimes it feels like it's so unfair. It is good and i know in your heart of hearts you'd agree. Cheer up, ellen =) You're pretty, intelligent, young, and so many other things to the people around you.Cess Lubaghttps://www.blogger.com/profile/02323691474602248860noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-48349119181568394462009-11-03T08:29:51.678-08:002009-11-03T08:29:51.678-08:00That sounds disappointing. Sorry you were not qua...That sounds disappointing. Sorry you were not qualified for the trial. :(Sarahttps://www.blogger.com/profile/17682240403253504759noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-77376342203860405022009-11-03T04:13:48.706-08:002009-11-03T04:13:48.706-08:00thats awful about the IGF! I hope your doc can fi...thats awful about the IGF! I hope your doc can figure out some other was to get your IGF down!Wayne N. Brownhttps://www.blogger.com/profile/17178852695570360860noreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-77269616307384510192009-11-02T22:56:10.016-08:002009-11-02T22:56:10.016-08:00Hi!
I am so sorry that you didn't get into th...Hi! <br />I am so sorry that you didn't get into the trial... Think that you could have got the Placebo instead...almuhttps://www.blogger.com/profile/06991961953678602937noreply@blogger.com