tag:blogger.com,1999:blog-7448405572418750362.post3146676551501497290..comments2023-08-21T04:48:36.954-07:00Comments on Acromegaly Bloggers: Goals for 2009Unknownnoreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7448405572418750362.post-48180827948001934822008-12-14T02:51:00.000-08:002008-12-14T02:51:00.000-08:00Great ideas. Good work. I've been thinking along s...Great ideas. Good work. I've been thinking along similar lines myself of outreach to increase awareness. I'm trying to find as many blogs as I can with acromegaly - the list is getting a little bit longer month by month. <BR/><BR/>TrysAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-43284133131296564562008-12-09T13:37:00.000-08:002008-12-09T13:37:00.000-08:00Apologies for being absent for so long. Some goo...Apologies for being absent for so long. Some good ideas here. I especially like the one about tracking treatments. I don't know two people yet who have had the same combination and dosage of drugs.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-59289965208549749782008-12-05T04:29:00.000-08:002008-12-05T04:29:00.000-08:00The same happened to me, Alecia!!The first time I ...The same happened to me, Alecia!!<BR/><BR/>The first time I met my boyfriend's dad after my surgery (I had met him before, but I didn't notice anything) I was surprised how big his nose was and how puffy his hands looked like. Obviously, I didn't say anything to him, but I asked my boyfriend if his father had always looked like that!! (Apparently he had always looked the same, so he is not acromegalic...)<BR/><BR/>You are right, polarchip, about raising awareness of acromegaly: to help others and to take away the label of "dull giant" usually (and wrongly) linked to this condition.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7448405572418750362.post-75900176616237959902008-12-03T15:51:00.000-08:002008-12-03T15:51:00.000-08:00Sounds like some great ideas. I am glad to see eve...Sounds like some great ideas. I am glad to see everyone coming forward and sharing their experiences with acromegaly. After my surgery I find myself looking at people and wondering "Hey? Do they have acromegaly?" I dare not ask *smiles.* <BR/><BR/>Thank you, Ellen, for putting the acromegaly bloggers site together...I think it has been a great help to lots of people!Alecia E.https://www.blogger.com/profile/11363588242388897810noreply@blogger.com