"Somatuline® Depot (lanreotide) Injection is now FDA-approved and will be available in pharmacies the week of October 15th.""(also marketed as Somatuline® Autogel® outside the
United States)"
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P.S. I asked my doc about this and he said he was involved in some of the clinical trials for it. It's basically the same stuff as Sandstatin except it's a little easier to administer and the rest is all marketing....
Hi!
Somatuline Autogel (outside US) is what I was injected before my first op(4 shots), supposed to make my tumor shrink (didn't work for me). I believe it is the same as Sandostatin...
Check these up and coming acromegaly treatment possibility things out:
Indevus Pharmaceuticals Reports Positive Results of Phase II Octreotide Implant Trial - 6 month implants.
ATL1103 subcutaneous injection, for Acromegaly and Vision disorders (Preclinical Development) - GHr blocker
Swedish firm sitting on a patent for using PPP to treat acromegaly, and doing nothing with it.
In particular, here is a link to their patent filing in 2002 for use of specific cyclolignans for inhibition of the insulin-like growth factor-1 receptor.
That PPP compound, which can be extracted from MayApples actually, looks quite promising. If you want to see more, read: full text of study using PPP for IGF-1 receptor inhibitor. The compound is amazing, and the side effects appear to be nil. Now get this thing on the market or I'll start manufacturing it in my basement!
There is more great information out that gives hope to us all. If you like this information, let me know, and I'll post more here.
Anon, thanks for the tip!! Who are you?? Interesting info- I will have to pore over the details
I always have my fingers crossed for new developments in acromegaly treatment! Do you have a blog? Do you want to be added to the list of links? Email any one of us!
polarchip,
Well, I guess I am "anonymous", and as such, I have no further identification available :)
Actually, I was recently SELF diagnosed (suspected for 3 years, led "blind" doctors to the answer by finally making them run GF/IGF-1 and MRI tests on me to confirm). Funny thing is, I asked point blank 3 years ago if I could have it, and was told "no".
My current endo tells me I detected it so early that they (doctors) would still have not seen it for another 10 years. I find this beyond sick, especially when a particular neurosurgeon tells my "you've probably had this for 10 years". WTF!!??
I'm bitter to say the least. But, at least I am intelligent enough to do research and lead the medical community to what should be obvious. I swear that the reason acro is "overlooked" is because they are trained (or told) to overlook it due to expense of treatment or something.
Well, who knows, perhaps I'll create an "identity" and join your blogging. Do you each contribute to this one site? If so, I'll add stuff if that is possible... I can post entries (and not publish), until other(s) review and decide if you want to publish, etc.
I have TONS of research information I'd love to share and get feedback on. I have dived into the depths of biochemistry, genetics, and much more. And, I have piles of notes and info from this.
You may find me a bit non-mainstream though. I have yet to get any drug or surgical therapy. The jury is out (in my mind) on what the right thing to do is. I've made serious alterations to my diet and lifestyle to minimize expression of IGF-1 if such a thing is possible (which, I suggest it is - since I see measurable results). But, I may need to go with meds/surgery yet. Just hard to accept.
And, I guarantee the prevalence of acromegaly is much higher than published figures. I suspect easily 10-fold, if not 100-fold, the published number of affected individuals. This of course keeps treatment costs insanely high (medicinal therapy) since the number of people (supposedly) needing the medicine is so small.
Well, enough said. I'll perhaps contact one of you soon if I can help with this content and you're interested.
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