Last week, I ordered the book, "Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World." I was initially told that it may take up to 3-4 weeks to Japan, so I thought the books will be delivered in April. Yet, they got here in Tokyo today, March 31st. SUPER!!
I will give several copies to my primary physicians. I'm sure they will love it.
I scanned the book, and it seems to have wonderful stories from patients and useful information from professionals.
I'm so excited to start reading the entire book.
Thank you, Wayne, for all the work to make this project possible!
Purchase from Amazon.com
Purchase from iUniverse
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3 comments:
So glad to see! Cant wait to hear what you think of it.
Hi all -- I thought I might have something to contribute here. I've been coping with this thing for a while now. I'm not sure what contacts you want. Charles Brownson, ocotilloarts@gmail.com. also a Facebook page with a profile and a website/blog which has nothing to do with acromegaly http://ocotilloarts.com
Could the people blogging here please help my student, Pam Ressler, RN, BSN, HN-BC, and me better understand patient
blogging by participating in a short online survey:
https://www.surveymonkey.com/s/TuftsPatientBloggingSurvey.
We greatly appreciate your help and hope you will send the link to others you know who blog about an illness.
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