Saturday, November 22, 2008

Goals for 2009

I haven't had the chance to update this blog as much as I would like, and I'm already thinking of New Year's resolutions for this blog! If you haven't been added as an author yet, please email me and I can add you easily.

Here are the improvements I would like to see in the upcoming year:
  • More posts: at least 2 a month. Not just from me, but from anyone!
  • Design makeover: fancier looking banner, more interesting color scheme.
  • More multimedia: Embed acromegaly related videos, pictures, and audio.
  • Make some kind of profile page for each contributor to this blog so that people can see a timeline, what kind of treatment each contributor has had, and any other personal info they feel like sharing.
  • Some kind of outreach program to raise awareness of acromegaly and therefore help people get earlier diagnosis (and more successful treatment). There are so many other professionals besides endocrinologists that can be on the lookout for symptoms: ophthalmologists, optometrists, dermatologists, dentists, orthodontists, podiatrists, hand doctors, jewelers (adjusting ring sizes), make up artists, etc etc. Can you think of more? Of course the general public should know about acromegaly too. When I think about how long I had symptoms and how long I went undiagnosed and I really want to make so no one else has to go through the same frustration.
  • In-person meet up somewhere?
  • Get acromegaly to show up in spell check! So frustrating that most software doesn't recognize it as a word!!
Please leave your own ideas in the comments!


Hello Dearest Acromegaly Friends!

Thank you for your comments on the last post- I have updated the url for Miss Magpie and I would like to introduce the newest member of the community:


I hope that everyone is doing well. I am sad that I missed announcing Cedars Sinai's Pituitary Patient day last month in Los Angeles- did anyone happen to go? I'm curious what they talked about and what kind of acromegaly turnout they had. They told me that there is a new acromegaly study starting soon and they need subjects- I don't have all the details yet but I will try to be better about sharing the info I get.