Friday, May 31, 2013

Acromegaly Paid Study

I just received this email if anyone is interested:

My name is Amanda Chen and I am a Health Researcher at Self Care Catalysts Inc.  We are a patient-centred research and solutions company, focusing on engaging patients to share their journeys.

Currently we are conducting a study on patients diagnosed with Acromegaly. This confidential study will involve a 60 minute telephone interview and the completion of 5 days of short-answer journal writing (approximately 10 minutes per day).

This is a compensated study. Attached is a copy of the poster about this research.

For any information you would like to know, or if you or anyone you know might be interested in participating, please do not hesitate to contact me anytime.

Below is an eligibility pre-interview survey for your reference:

Amanda Chen | Research & Analytics Associate
Self Care Catalysts Inc.
MaRS Centre, South Tower Ste 300
101 College St. Toronto, ON M5G 1L7
T 416-673-6676 | C 416-821-8435

Wednesday, May 29, 2013

LAR Injections & Scar Tissue

I'm wondering if anyone has a problem with scar tissue inhibiting injection of Sandostatin LAR? I'm on 40mg every 3 weeks. I've been getting LAR injections for almost 7 years. In about the last year my doctor has been having problems injecting, and a significant amount of medication is spilled. At first I thought he wasn't thawing medication properly. But it's happening almost every month now. I also have hard lumps as though medication collects in one spot and doesn't distribute. I haven't tried massage extensively, but its very painful and doesn't seem to reduce lumps. My symptoms are trying to return and my IGF-1 is slowly increasing as I'm not receiving the optimal dose. Anyone with experience or suggestions?? I'm hoping I don't have to go the daily injection route. I imagine I'd eventually build scar tissue that way too. Thanks!