Friday, May 21, 2010

All About Tanya!

I have been a big fan of Tanya Angus for a while - I first heard of her when Ken blogged about her MSNBC appearance back in June 2009, I admired her acromegaly awareness efforts in January, and Jenny blogged about her TLC television appearance in March.  Just today, a comment came in from someone who knows her, and it looks like Tanya has her own website now!  It's still under construction, but I thought I'd share so that we can all check it out and express our support:

I'm so excited that there is now a centralized place on the internet where I can learn more about Tanya!  I've said this before, and I'll say it again... I'm so grateful for all the work that Tanya has put into spreading the word about acromegaly.  I truly believe that a REAL CURE is on the way, and it will be a result of people who are motivated by people like Tanya. 
I found a new video I haven't seen before on Tanya's website, and it's so delightful to see her smile!

Wednesday, May 19, 2010

Business Cards...

I often find myself explaining acromegaly to people, and I want to help them remember what it is so that they can explain it to others and increase awareness of the disease.  I went online to a website that offers free business cards, and created this mock-up of a little card I'd like make.

I figure I can hand them out to people I talk to, they can look up "acromegaly" online later on or they can pass it along to a friend.  I think it might be useful to share these with people who are in a position to identify people who might be affected as well- people who work with people's hands, feet, skin, teeth, or faces.

What information would you put on an "Acromegaly Awareness" card?

Thursday, May 6, 2010

Upcoming Events

In case you haven't seen this on yet, the Magic Foundation is running...

The 5th Annual Convention for Adults with Pituitary Disorders

Including: Adult Growth Hormone Deficiency, Panhypopituitarism, Cushings and Acromegaly!

June 11-13, 2010
Chicago O’Hare Marriott Chicago, Illinois

All-Inclusive Convention Registration Fee: $155 for members* $190 for non-members* (includes a 1 year membership) *Registration fee includes Friday reception with appetizers, Saturday continental breakfast and lunch, and Sunday continental breakfast and lunch for one attendee. Additional attendees in your family can choose to pay $95 each for all-inclusive package above.

If you're planning on going or have been to this event in the past, please let us know in the comments!