Friday, February 20, 2009

Where are all the support groups?

I was checking out one of the support forums, AcromegalySupport.com that we have a link to (on the right sidebar) and it seems like most of the activity on that site happened back in 2007. The most recent post, from Jan 28, 2009 reads:
Anybody still check here? I sure do miss this forum... Best of the lot, in it's day. I'd love to resurrect its primacy and valuable resource of friends and contributors.

-Jeff
I tried to post a response (and point people to this blog!) but my account request was never approved. I even emailed the administrator but I never got a response. If any of you are registered members over there, please let people know about this blog and also tell the admin to allow new members!

I tried looking at MSN Acromegaly Groups as well, but the page reads "The MSN Groups service will close in February 2009," so there goes another online support group.

The MySpace Acromegaly Support Group seems to be doing ok, with a new topic every couple of months or so. I found more activity on Facebook, with an Acromegaly Support, a Pitutary Tumor Awareness, and a Acromegaly Awareness group! I haven't had a chance to go through all the discussion boards, but there are over 100 members in their Acromegaly Support Group! Pretty impressive.

Does anyone else have recommendations for more online support groups? Please let me know about them in the comments and I will update our sidebar to include all the new findings.

Of course, my fellow Acromegaly Bloggers will always have a special place in my heart. You have been the best support for me. I really love how following people's blogs has allowed me to get to know people as individuals. I also like how in people's blogs, acromegaly has context, like I can see how it fits into the bigger picture of living life (family, moving, graduating, career, etc). Remembering that life goes on despite having acromegaly has helped me to stay positive. Thanks to all my fellow Acromegaly Bloggers!

7 comments:

Anonymous said...

Please come and join us on the DailyStrength.org Acromegaly Support Group, where we have thriving discussion boards and a growing membership of acromegaly patients, currently almost 100.

The link is: http://dailystrength.org/c/Acromegaly/support-group

polarchip said...

Great! I have added DailyStrength.org to the sidebar!


Thanks for the tip.

acromegaly said...

If you keep an eye on the section "Acromegaly Forums" in my diary ( www.acromegaly.wordpress.com ) then it gives a handful for forums related to acromegaly that may be helpful. Some are less busy than others, but sometimes the less busy ones are sometimes more informative as they are less likely to attract certain types of characters.

It's a shame that "AcromegalySupport" has been abandoned (I registered, but with no response) as the messages on there were great.

Trys
www.acromegaly.wordpress.com

Starbucks Addict said...

I joined the Daily Strength group. It's an active group and everyone's very welcoming :-)

acromegaly said...

Another support group that has not long started up is PituitaryChat.com

polarchip said...

I have added PituitaryChat.com to the sidebar- thanks!

acromegaly said...

Thank you! :) :) Hope to see you on there.