Last week, I ordered the book, "Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World." I was initially told that it may take up to 3-4 weeks to Japan, so I thought the books will be delivered in April. Yet, they got here in Tokyo today, March 31st. SUPER!!
I will give several copies to my primary physicians. I'm sure they will love it.
I scanned the book, and it seems to have wonderful stories from patients and useful information from professionals.
I'm so excited to start reading the entire book.
Thank you, Wayne, for all the work to make this project possible!
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